Type of Seizure
My daughter was diagnosed with epilepsy at age 3. Her seizures have changed over the years. Currently, when she had a seizure, she looks to the right and then up to the right. Basically, this lasts a split second but can go on for minutes. She can converse, eat, play etc during these episodes. Occasionally, she will need a rescue if they go on past 5 minutes or so. These do not impact her at all but are quite troubling to me as her mom. Has anyone else experienced these type of seizures. They puzzling even to her Neurologist.
Thank you
, thank you for sharing your daughter's experience. I can't imagine how difficult it must be to watch your daughter have uncontrolled seizures. Have you and your daughter's neurologist spoken about Absence Seizures? I have been diagnosed with Absence Seizures. Your description sounds similar. However, I don't know if I a person can still talk, play, or eat during an Absence Seizure. (I'm not a doctor - I'd ask her neurologist for more information.)
Due to my diagnosis, I recently had my daughter evaluated at Phoenix Children's Hospital. She periodically twitches and stares. Her evaluation showed that her behavior is not related to a neurologic issue. However, if they would have been concerned, I had planned to discuss either an EEG or an Epilepsy Monitoring Unit (EMU) stay. Consider talking to her neurologist about an EMU stay. Sometimes these extended stays with an EEG can give more information. I attached a link with more information about EMU stays.Thank you very much for this information.
Andrea
Thank you Colleen. This is very helpful and something I will discuss with my daughter's doctor.
Best,
Andrea
, While I hope someone who has more experience with these types of seizures might jump in, I just wanted to say thank you for reaching out and sharing. Being a mom of a child with epilepsy can be so challenging – with all the worries and questions that can come along with seizures. And while I'm not a medical professional, I do know that repetitive movements are a common seizure symptom, and that these movements can vary by individual. Here is an article with more info: https://epilepsydisease.com/symptoms/repetitive-movements Again, thank you for being here and sharing with us. Sending a hug to you and your daughter. 💜 Warmly, Colleen (Epilepsy Team Member)
