Hello everyone,
I am 27 years old and have had 2 “seizure” type events over the past 2 weeks.
I’m looking for some reassurance as it feels as though the drs and medical professionals are being dismissive of these events and they have been frightening experiences.
My first one my husband found me on the floor, twitching and jerking and I lost control of my bladder. The paramedics rushed me to A and E as a “first seizure” - however the drs were reluctant to call it a seizure as they hadn't witnessed it. They also said it wasn’t very long (my husband guessed it was about a minute).
After my second one (similar in onset, my husband found me in bed jerking and unconscious with my eyes closed) the doctors again were reluctant to say they were seizures because it was too long (5 minutes). I again lost control of my bladder and but the tip of my tongue. They queried if it was anxiety, as I have generalised anxiety disorder for which I take medication.
They have said I will have to wait for investigation- which may take months. In the meantime we asked if I need to come to the ER after the seizures and the response was “only if you think it helps”.
I’m obviously feeling very lost and worried about all of this. What is the best that I can do to help the wait (in that I want to try to avoid and onsetting of seizures) and what have been your experiences of the process?