Don't give up
I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times a week for 5 years. During that time I pray to God every day to make them go away. The doctor told me that I would never drive, I would never work, and they wanted me to wear a helmet to school however, I didn't want to and I didn't so my doctor then told me about a new surgery that could potentially help me. So I went to have the surgery and while I was in observation they asked if I wanted to try a new medication that could potentially help, I said yes and guess what... It worked! I didn't need the surgery and that was 23 years ago! I'm now 41 years old. I never gave up. Even now I still don't have seizures though my epilepsy makes things harder for me to do, I pray and I do not give up!
💡Question for the community💡
This community member shares how they chose to lean into their faith versus giving up on themselves throughout their journey with epilepsy. Has there been anything you've particularly leaned on to help you maintain your emotional strength in your epilepsy journey? Share with us in the comments below!
I started having seizures when I was 5 years old. That was 1968 the next time I had one was 1972 then 77 and the last one 1983 while in college. I was being a bad boy and didnt take my meds. I have been seizure free since then thank goodness, but I know that if I dont take my medication I will get one. I am able to do normal things like drive, but am not doing anything crazy. I recently retired from law enforcement and my goal now is to help others where I can. I have been very fortunate to have supportive people around me and am very grateful for all of them. I take phenobarbital, and though people have told me to take newer medications I chose to stick with this which has worked for me. I know the consequences of getting a seizure, like drivers license being taken away. So I simply cant take that chance at my age.
Yes. My daughter was told by this by her teacher.
For me, my family’s been my rock through all of it. They’ve always been there, even on the bad days, reminding me that I’m not dealing with this alone.
Yes, still happens
