Caring for Someone With Epilepsy: Seizure Care
As a caregiver, how do you care for a loved one when they have a seizure?
I have suffered nocturnal seizures for 25 years now. I have a RNS implant and a VNS implant along with medications. I have multiple back to back or 30-90 min apart mostly. My husband has to use emergency nose sprays or I end up in the ER with frequent flyer miles. I have been status epilepticus three times with 19 Grand Mals in a row and in a drug induced coma for four days. I survive in Montana but have to travel to Seattle to get honest medical care and treatment for my implants. Montana is beautiful but not a place to live with a serious medical condition. I have never been diagnosed with SHE and am once again amazed that with my RNS recordings to prove when my seizures take place to what degree they are that I haven't but I am still here and being grateful is the only thing Epilepsy hasn't taken from me. I don't sleep in fear of never waking up and hope the future brings more providers and prevention to those that live and fight with this disease.
my heart breaks for all that you have been through. Thank you for sharing your story with us. I can hear your positive mindset through all of the difficult journeys you have been on. Keep up the good fight. Jill (Team Member)
You move items out of his way turn him on his side and talk to him assuredly him everything will be ok after he’s finnished jerking i helping him to lay down on the bed until he gets finnished.
Guardian. Angelic
Make sure she is safe and cannot hurt herself, and time the seizure.
have you heard of the anti Sufication pillow
https://breathe-zy.com/en-us
