Ask the Advocates: Your Care TeamWhen it comes to receiving epilepsy care, finding the right doctor can make all the difference. Whether it's having deep knowledge of anti-seizure drugs, being easily accessible for questions, or...Reactions0reactionsComments0 comments
Mourning the Child You Thought You HadWhen Matthew was born, he was full term, had a high Apgar score and was just as perfect as a baby could be. He hit all his milestones as any...Reactions0reactionsComments0 comments
Ask Real Patients: Is Epilepsy Misunderstood?For those living with epilepsy, it can feel like others just don't get it. Seizures, medications, side effects, anxiety, stigma... Epilepsy can affect so many aspects of everyday life. Managing...Reactions0reactionsComments0 comments
Coping with Difficult Caregiver Decisions"We made the best decision based on the information we had at the time." It's the mantra I repeat to myself when the feeling of guilt starts to creep in...Reactions0reactionsComments0 comments
Fear of the Next SeizureEpilepsy is unpredictable. Knowing if or when the next seizure will strike can cause immense stress and anxiety. These feelings can weigh heavy on someone living with a seizure disorder...Reactions0reactionsComments8 comments
Ask the Advocates: Your Epilepsy Treatment JourneyTreating epilepsy is not an exact science. For each individual patient, what works and what doesn't work will vary. An anti-seizure drug that works for one person may not work...Reactions0reactionsComments0 comments
Legalization of Medical Marijuana: The Impact on Those Living With Chronic Health ConditionsSurveys show a majority of people in the United States are in favor of legalized marijuana for medical or recreational use. As of early 2022, cannabis for medical use, or...Reactions0reactionsComments0 comments
My Son's Epilepsy Diagnosis: Now What?I can remember sitting in the neurologist's office hearing that my son, Matthew, has epilepsy. The day was October 31, 2008, 2 days away from his 6th birthday. It was...Reactions0reactionsComments0 comments
Ask the Advocates: Who Has Supported Your Epilepsy Journey?Epilepsy is hard. Period. Whether it's navigating medication options, enduring daily side effects, fearing the next seizure, or facing judgments and stigma – people living with epilepsy can have a...Reactions0reactionsComments0 comments
Epilepsy Awareness Month 2022 Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the I Am More Than My Epilepsy Awareness Package Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES...Reactions0reactionsComments0 comments
In America: What's That?The In America survey is now closed. When people hear "epilepsy," they might think of what they have seen on TV or in a movie. A convulsive seizure, someone falling...Reactions0reactionsComments0 comments
Getting a Second OpinionA diagnosis of any disease or life-altering condition like epilepsy can be overwhelming. You may have many questions about your diagnosis. You may also be curious about your treatment options...Reactions0reactionsComments0 comments
EpilepsyDisease.com Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on EPILEPSYDISEASE.COM, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article...Reactions0reactionsComments0 comments
The Emotional Toll of EpilepsyThe burden of epilepsy is that it follows you wherever you go. Before my brain surgery, it started the moment I woke up each morning. Did I get at least...Reactions0reactionsComments1 comments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions like epilepsy often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating are frequent side effects too. That is why...Reactions0reactionsComments0 comments
Being a Friend to Someone With EpilepsyI had been alone in my journey of being an epileptic person. I never shared my epilepsy story with anyone. I felt too insecure to share my story. And I...Reactions0reactionsComments1 comments
What is a Mental Health Emergency?Mental health emergencies can look different for different people. They all can put you at risk of losing your life, getting into legal trouble, losing family, or having a serious...Reactions0reactionsComments0 comments
"D-Day" (Diagnosis Day): The Day Epilepsy Entered Our Lives"This probably means she won’t be able to get her driver’s license," I remember saying to my husband when we first received our daughter's epilepsy diagnosis. At the time, that...Reactions0reactionsComments0 comments
How to Handle Insurance Denials and LimitsFinding out that your health insurance company has denied a claim can be frustrating and complicated. Your insurance company must provide you with the following pieces of information if it...Reactions0reactionsComments0 comments
Seizure Recovery: Who, What, Where, When, Why?Where am I? Why am I on the floor? What day is it? Did I have a seizure? When? Who was there? Returning to reality following a seizure is different...Reactions0reactionsComments1 comments