The Connection Between Epilepsy and Down SyndromeEpilepsy is a condition that affects the central nervous system. People with epilepsy have abnormal brain activity that causes seizures. Not everyone who has had a seizure has epilepsy. Most...reactions2comments
Dating With Epilepsy: 3 Ways to Navigate Dating When Your Seizures Are ActiveDating is a task within itself. I had been seizure-free for 3 years, up until recently. To be honest, epilepsy has been my little dark secret. The thing that I...reactions1comment
Is Epilepsy a Disease or Disorder?When I was first diagnosed with epilepsy in 2010, I just assumed epilepsy was a disease. Like cancer or heart disease, it can impact anyone and has multiple causes. But...reactions5comments
Become an EpilepsyDisease.com Patient LeaderUpdate: The application is now closed. Would you like to share your experience with epilepsy and help others who are also living with the condition? Whether you live with epilepsy...reactionscomments
Taking Anti-Seizure Drugs: What Are the Long-Term Risks?Managing drug treatment for epilepsy can be tricky because you need to balance it with your quality of life. Anti-seizure or antiepileptic drugs (AEDs) effectively prevent seizures in about 7...reactions3comments
Sleepless Brain, Sleepless NightsHaving epilepsy, it is so important that we listen to our bodies and ensure that we are getting enough rest. Easier said than done – without a doubt for many...reactionscomments
“Why?”: How Avoiding This Question Has Helped Me Cope With My Daughter’s Epilepsy Diagnosis"Why?" It's the question I asked myself over and over after my daughter's epilepsy diagnosis and throughout much of the next year of failed medications and failed brain surgeries. "Why...reactionscomments
Ask the Advocates: What Has Epilepsy Taught You?No epilepsy journey is the same. Its ups and downs, its challenges and obstacles – epilepsy can take its toll. But like all of life's hardest parts, it also can...reactionscomments
10 Things You Need To Know About EpilepsyEpilepsy is often overlooked and not talked about. Yet, it is a very common disorder around the world. First things first, what is epilepsy? It's a disorder that causes seizures...reactionscomments
Ask the Advocates: Your Care TeamWhen it comes to receiving epilepsy care, finding the right doctor can make all the difference. Whether it's having deep knowledge of anti-seizure drugs, being easily accessible for questions, or...reactionscomments
Mourning the Child You Thought You HadWhen Matthew was born, he was full term, had a high Apgar score and was just as perfect as a baby could be. He hit all his milestones as any...reactionscomments
Ask Real Patients: Is Epilepsy Misunderstood?For those living with epilepsy, it can feel like others just don't get it. Seizures, medications, side effects, anxiety, stigma... Epilepsy can affect so many aspects of everyday life. Managing...reactionscomments
Coping with Difficult Caregiver Decisions"We made the best decision based on the information we had at the time." It's the mantra I repeat to myself when the feeling of guilt starts to creep in...reactionscomments
Fear of the Next SeizureEpilepsy is unpredictable. Knowing if or when the next seizure will strike can cause immense stress and anxiety. These feelings can weigh heavy on someone living with a seizure disorder...reactions8comments
Ask the Advocates: Your Epilepsy Treatment JourneyTreating epilepsy is not an exact science. For each individual patient, what works and what doesn't work will vary. An anti-seizure drug that works for one person may not work...reactionscomments
Legalization of Medical Marijuana: The Impact on Those Living With Chronic Health ConditionsSurveys show a majority of people in the United States are in favor of legalized marijuana for medical or recreational use. As of early 2022, cannabis for medical use, or...reactionscomments
My Son's Epilepsy Diagnosis: Now What?I can remember sitting in the neurologist's office hearing that my son, Matthew, has epilepsy. The day was October 31, 2008, 2 days away from his 6th birthday. It was...reactionscomments
Ask the Advocates: Who Has Supported Your Epilepsy Journey?Epilepsy is hard. Period. Whether it's navigating medication options, enduring daily side effects, fearing the next seizure, or facing judgments and stigma – people living with epilepsy can have a...reactionscomments
Epilepsy Awareness Month 2022 Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the I Am More Than My Epilepsy Awareness Package Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES...reactionscomments
In America: What's That?The In America survey is now closed. When people hear "epilepsy," they might think of what they have seen on TV or in a movie. A convulsive seizure, someone falling...reactionscomments
