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Read conversations, start a discussion, and connect with others about epilepsy.

Active today

Travel Insurance with epilepsy

Has anyone with epilepsy who paid for a Health Insurance when travelling had an epilepsy condition that needed treatment when abroad with...

Active 5 days ago

Do you know what triggers your seizures?

Do you know what triggers your seizures? What triggers your seizures may be different than what triggers someone else's. Share your seizure...

Active 8 days ago

Questions for Your Doctor

Do you write down questions to ask your doctor before your appointments? Do you use an app, notes, or paper to keep...

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was...

Emotional Triggers?

Have you ever noticed a link between heightened emotions (like anger or stress) and your seizures?...

Invisible Parts of Epilepsy

What’s the most exhausting part of living with epilepsy (or supporting someone who does) that people don’t see? Share your experience with...

Grandson- 5 years old - Doose Syndrome

Just Diagnoised with Doose Syndrome. His parents have been with him through 85 days of testing. As a grandparents, my wife and...

Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?...

Grandparents Looking for Help - Doose Syndrome

Our grandson (age 5) was just diagnosed with Doose Syndrome. His parents have been with him through 85 days of testing. As...

Nocturnal seizures

Hi has anyone else had these and none whilst awake ?...

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