The Invisible Burden of EpilepsyEpilepsy is a serious neurological disease that affects millions of people worldwide. Around 5 million people are diagnosed with the condition each...reactionscomments
New Medication, But I Feel BlahIt's been a year on this journey of finding the right medication to replace phenobarbital. I won't lie. It has been challenging...reactions1comment
Mourning the Child You Thought You HadWhen Matthew was born, he was full term, had a high Apgar score and was just as perfect as a baby could...reactions2comments
Sleep-Deprived EEG Versus Ambulatory EEG: What Are They Like?EEGs (electroencephalograms): we've all had them and few of us love them. I am thankful for their existence. My first EEG diagnosed...reactionscomments
Other Medications’ Impact on the Effectiveness of Seizure MedsI’ve shared about the challenges that can arise from medication side effects. There is another side to medication side effects than how...reactions9comments
Seizures and Epilepsy in the LGBTQ+ PopulationAbout 2.4 percent of people who identify as LGBTQ+ have epilepsy. That is compared to 1.2 percent of cisgender heterosexual people. Cisgender...reactionscomments
Community Pulse: Epilepsy in the MediaThe way epilepsy is shown in the media can have a big impact on how people understand the condition. Unfortunately, portrayals can...reactionscomments
When I Reach My Ceiling, Seizures BeginMy seizures are triggered in various ways. Like most people with epilepsy, we learn our triggers over time. I’ve learned my seizure...reactionscomments
Preparing for Back to School With EpilepsyAs the back-to-school season approaches, it's essential to address how adult students with epilepsy, particularly those who are nonverbal, and their caregivers...reactions2comments
5 Things You Should Know Before Switching Epilepsy MedicationEditor's Note: Always consult your doctor before making any changes to your medication or treatment plan. Living with epilepsy means navigating the...reactions1comment
Ask the Advocates: Who Has Supported Your Epilepsy Journey?Epilepsy is hard. Period. Whether it's navigating medication options, enduring daily side effects, fearing the next seizure, or facing judgments and stigma...reactionscomments
Navigating Workplace Challenges: Overcoming Epilepsy StigmaIn today's diverse workplaces, I often face significant challenges due to stigma and discrimination associated with my epilepsy. Overcoming these obstacles requires...reactions10comments
Navigating the Prior Authorization MazeWhile intended to ensure appropriate and cost-effective care, prior authorizations often create significant barriers to patients and caregivers. This can impede timely...reactions1comment
Navigating a Sudden Change in Healthcare Providers: Tips for a Smooth TransitionFinding the right doctor can be a trying task. I thought I had found the right doctor. So much so, that we...reactionscomments
Was That a Nightmare? Frightening Seizures and Postictal StatesYou might assume that getting pulled beneath a highway bridge while walking to school, where a bully shoved a weapon at me...reactionscomments
The Twelve Hour CycleIt's 7:00 a.m., and my medication alarm goes off. I get up and walk over to my locked medicine cabinet, taking my...reactions2comments
Find Connection: Living with EpilepsyEpilepsy is often misunderstood by those that haven't been impacted by it. That is why our forums have been a safe space...reactions1comment
What Is An Epileptologist, and When Should I See One?If you or a loved one has epilepsy, you may have heard the term epileptologist. You may have wondered what the word...reactionscomments
Can You Die From Epileptic Seizures?Can you die from epileptic seizures? At first, I didn't want to know the answer, but my very first seizure was an...reactions3comments
Losing My License and Trekking to WorkThe first time I slipped my car keys into a drawer for the unforeseeable future was like locking up my independence. I...reactions2comments
