Can Dravet Syndrome Affect Facial Features?Dravet syndrome is a rare form of epilepsy that starts in infancy. It is also called severe myoclonic epilepsy of infancy (SMEI). Seizures can be life-threatening and hard to treat...Reactions0reactionsComments0 comments
Hearing "You Don’t Look Sick" When Living With EpilepsyIt goes like this when you live with an illness like epilepsy: you will deal with, and you spend too much time trying to teach individuals who don't understand your...Reactions0reactionsComments14 comments
Seizure Triggers in Dravet SyndromeDravet syndrome is a form of childhood epilepsy that begins in infancy. Older names for Dravet syndrome include polymorphic seizures, polymorphic epilepsy in infancy, or severe myoclonic epilepsy in infancy...Reactions0reactionsComments0 comments
Getting Better Sleep With EpilepsyI would argue that getting plenty of sleep is perhaps the single greatest of all things you can do to control your epilepsy. My greatest improvement in the reduction of...Reactions0reactionsComments2 comments
What Is the Connection Between LGS and Infantile Spasms?Infantile spasms (IS) and Lennox-Gastaut syndrome (LGS) are both seizure disorders that affect children. Researchers have found that 1 in every 3 children that live with IS will one day...Reactions0reactionsComments0 comments
Womanhood and Epilepsy: I Didn't Get the MemoWhat's the introduction you hear when you "become a woman"? How does it feel? You've become a woman. Realistically speaking, it is the most paramount level of pain, discomfort, and...Reactions0reactionsComments4 comments
The Debate About DrivingNothing in my life has been as terrifying as when I didn't know if I'd hit someone with my car during an epileptic seizure and then drove off. Hit and...Reactions0reactionsComments7 comments
Overcoming Epilepsy by Learning How to Fail"I have not failed. I've just found 10,000 ways that won't work," Thomas Edison once said about his quest to invent the light bulb. Good words. The more experiences I...Reactions0reactionsComments0 comments
Instagram Live: Conversations With Our Epilepsy Health LeadersEpilepsyDisease.com recently hosted our first Instagram Live with our Health Leaders Natalie Beavers, Derra Howard, and Anita Meeks to share their experiences living with epilepsy. Our conversation covered personal experiences...Reactions0reactionsComments0 comments
Hallucinations and SeizuresA seizure takes place when there is a sudden electrical surge in the brain. How this surge affects a person with epilepsy depends on the location of the seizure. Symptoms...Reactions0reactionsComments0 comments
Is Epilepsy Making Me to Forget?Living a life with epilepsy can be difficult. There are many downsides of epilepsy. And it takes a really strong heart and mind to live with this condition. One of...Reactions0reactionsComments0 comments
How I Travel With My Epilepsy MedicationSince I was 16 years old, I have traveled to many different places. During my travels, whether they are day trips or 2-week trips I always take my epilepsy into...Reactions0reactionsComments2 comments
"It's Just Anxiety..." How Doctors Dismissed My SeizuresBeing a female and developing a chronic illness comes with its own obstacles. Not only are we now made to navigate the reality of having a chronic illness, but we...Reactions0reactionsComments5 comments
Epilepsy Preparedness in Schools: A Mom's PerspectiveRecently I watched a news article about a local school that was able to save a young adult who was having a drug overdose by using NARCAN Nasal Spray. This...Reactions0reactionsComments1 comments
Being a Single Man and Dating with EpilepsyMany people worried about what epilepsy will do to loving relationships, but I think the majority are very genuine with the marital vow, "In sickness and in health." Actually, for...Reactions0reactionsComments2 comments
A Career Path Rerouted by EpilepsyI had to laugh. Cardboard boxes scattered across the floor in my new Minneapolis apartment. I unpacked 1 and reached in to find something I hadn't seen since high school...Reactions0reactionsComments0 comments
My Pregnancy Care PlanAs the new year approached, I solidified my transition to my new neurologist. During our first meeting, we discussed my care plan for my pregnancy and related it to my...Reactions0reactionsComments3 comments
The Emotional Impact of Caring for a Child With EpilepsyChildhood epilepsy can have long-term consequences for those with the condition. But epilepsy also affects the parents and caregivers of children who have it. Caring for a child with epilepsy...Reactions0reactionsComments4 comments
Adapting to Life With EpilepsyMy seizures started my sophomore year of college when I was involved in different clubs and organizations every day of the week, beyond just my studies. I was in the...Reactions0reactionsComments0 comments
Losing My License and Trekking to WorkThe first time I slipped my car keys into a drawer for the unforeseeable future was like locking up my independence. I was 25 years old and a car had...Reactions0reactionsComments2 comments