Coping with Difficult Caregiver Decisions"We made the best decision based on the information we had at the time." It's the mantra I repeat to myself when...reactionscomments
"D-Day" (Diagnosis Day): The Day Epilepsy Entered Our Lives"This probably means she won’t be able to get her driver’s license," I remember saying to my husband when we first received...reactionscomments
When Nothing Works to Control SeizuresWhen my daughter was diagnosed at 6 months old with a rare form of epilepsy called infantile spasms, I knew very little...reactions2comments
Little Seizures, Big Consequences: Recognizing Signs of Infantile SpasmsPrior to August 2020, I knew very little about epilepsy. What I did know came from movies and TV shows. I pictured...reactionscomments
“Why?”: How Avoiding This Question Has Helped Me Cope With My Daughter’s Epilepsy Diagnosis"Why?" It's the question I asked myself over and over after my daughter's epilepsy diagnosis and throughout much of the next year...reactionscomments
