When Nothing Works to Control SeizuresWhen my daughter was diagnosed at 6 months old with a rare form of epilepsy called infantile spasms, I knew very little about the disease. My ideas regarding epilepsy and...Reactions0reactionsComments2 comments
Little Seizures, Big Consequences: Recognizing Signs of Infantile SpasmsPrior to August 2020, I knew very little about epilepsy. What I did know came from movies and TV shows. I pictured full-body shaking, eyes rolling back, grand mal seizures...Reactions0reactionsComments0 comments
“Why?”: How Avoiding This Question Has Helped Me Cope With My Daughter’s Epilepsy Diagnosis"Why?" It's the question I asked myself over and over after my daughter's epilepsy diagnosis and throughout much of the next year of failed medications and failed brain surgeries. "Why...Reactions0reactionsComments0 comments
Coping with Difficult Caregiver Decisions"We made the best decision based on the information we had at the time." It's the mantra I repeat to myself when the feeling of guilt starts to creep in...Reactions0reactionsComments0 comments
"D-Day" (Diagnosis Day): The Day Epilepsy Entered Our Lives"This probably means she won’t be able to get her driver’s license," I remember saying to my husband when we first received our daughter's epilepsy diagnosis. At the time, that...Reactions0reactionsComments0 comments
