Epileptologists and Epilepsy Care

When you first meet your neurologist, it's like a Disney in the sense of everything in the beginning is all sunshine and flowers. If anyone is familiar with a Disney movie, you know how it goes from there. Or better, if anyone has seen GOT (Game of Thrones), then it’s like being blindsided by any Stark-related death. #winteriscoming.

Finding an epileptologist

There are some who are fortunate to meet a neurologist who is informed about epilepsy or even one who speaks with an epileptologist. For those who are shocked, it’s what it is: an epileptologist is a doctor who specialize in anything epilepsy/seizure-related.

I only discovered this less than a year ago, thanks to my research and one random Instagram post from doctorbrainbarbie. I believe that having an epileptologist is beneficial to get a better understanding of your epilepsy and what causes your seizures.

Unfortunately, most of us often feel like robots, unsure what to do next, without time to process our neurologist's previous conversation. One of my doctors asked when I was going to have a baby (yes, he’s male), and another seemed to always rush the process to get me out there (once I was with the doctor for less than 10 minutes).

Needing more than prescription refills

After a while, there is no point in them besides seeing them once, so they can continue writing your prescription. Most know that's the time the person actually goes to see the neurologist, besides the first year or any major event. Also, some are quick to change your dose or medication brand without a second thought or your opinion in the matter.

Clear communication is important

I understand they're the doctors, but doctors also need to communicate with patients, especially when the patient is the one going through the process. The rudeness of some of the doctors, like you, is that they don't schedule an appointment to ask for their opinion of the medication, so they can take the next steps to do their job.

I remember one of my neurologists asked more therapy-type questions instead of the typical doctor questions, like how are the new meds going?

As I get older and life happens, I will need to be provided with more information on how things will affect not only my body but also other bodily dilemmas. During this time, I truly hope I will meet my neurologist or eventually get an epileptologist who makes everything turn into the beginning of a Disney movie.