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A Rare Epilepsy Diagnosis: Caring for a Loved One

The Realities and Acceptance of the Caregiving Role

Some of us are natural-born caregivers and some of us need more time and energy to learn the skill of caregiving. It is a balancing act of caring for yourself...

What Is Dravet Syndrome?

Dravet syndrome is a rare but severe form of epilepsy that begins in infancy. The condition also used to be called severe myoclonic epilepsy of infancy or polymorphic epilepsy in...

What Is Lennox-Gastaut Syndrome?

Lennox-Gastaut syndrome (LGS) is a rare and severe form of epilepsy that begins in childhood. LGS often causes learning problems and developmental delays. There is no cure for LGS, but...

Coping with Difficult Caregiver Decisions

"We made the best decision based on the information we had at the time." It's the mantra I repeat to myself when the feeling of guilt starts to creep in...

What Is the Connection Between LGS and Infantile Spasms?

Infantile spasms (IS) and Lennox-Gastaut syndrome (LGS) are both seizure disorders that affect children. Researchers have found that 1 in every 3 children that live with IS will one day...

Can Dravet Syndrome Affect Facial Features?

Dravet syndrome is a rare form of epilepsy that starts in infancy. It is also called severe myoclonic epilepsy of infancy (SMEI). Seizures can be life-threatening and hard to treat...

Community Poll

When making treatment decisions for your loved one, do you primarily rely on the recommendations of the healthcare team or your own research?

Seizure Triggers in Dravet Syndrome

Dravet syndrome is a form of childhood epilepsy that begins in infancy. Older names for Dravet syndrome include polymorphic seizures, polymorphic epilepsy in infancy, or severe myoclonic epilepsy in infancy.1...

Does Deep Brain Stimulation Work in Lennox-Gastaut Syndrome?

Lennox-Gastaut syndrome (LGS) is a severe type of epilepsy. Seizures usually start before 4 years old. People with LGS have many types of seizures, including tonic seizures, in which muscles...