The Realities and Acceptance of the Caregiving RoleSome of us are natural-born caregivers and some of us need more time and energy to learn the skill of caregiving. It is a balancing act of caring for yourself...Bookmark for later
What Is Dravet Syndrome?Dravet syndrome is a rare but severe form of epilepsy that begins in infancy. The condition also used to be called severe myoclonic epilepsy of infancy or polymorphic epilepsy in...Bookmark for later
What Is Lennox-Gastaut Syndrome?Lennox-Gastaut syndrome (LGS) is a rare and severe form of epilepsy that begins in childhood. LGS often causes learning problems and developmental delays. There is no cure for LGS, but...Bookmark for later
Mourning the Child You Thought You HadWhen Matthew was born, he was full term, had a high Apgar score and was just as perfect as a baby could be. He hit all his milestones as any...Bookmark for later
What Is the Connection Between LGS and Infantile Spasms?Infantile spasms (IS) and Lennox-Gastaut syndrome (LGS) are both seizure disorders that affect children. Researchers have found that 1 in every 3 children that live with IS will one day...Bookmark for later
Can Dravet Syndrome Affect Facial Features?Dravet syndrome is a rare form of epilepsy that starts in infancy. It is also called severe myoclonic epilepsy of infancy (SMEI). Seizures can be life-threatening and hard to treat...Bookmark for later
Seizure Triggers in Dravet SyndromeDravet syndrome is a form of childhood epilepsy that begins in infancy. Older names for Dravet syndrome include polymorphic seizures, polymorphic epilepsy in infancy, or severe myoclonic epilepsy in infancy...Bookmark for later
From Healthy to Dravet2017 was one of the best years of my life. My husband came back from a deployment just in time for our son's 2nd birthday. We moved from South Carolina...Bookmark for later
Does Deep Brain Stimulation Work in Lennox-Gastaut Syndrome?Lennox-Gastaut syndrome (LGS) is a severe type of epilepsy. Seizures usually start before 4 years old. People with LGS have many types of seizures, including tonic seizures, in which muscles...Bookmark for later
Our Child Has a Dravet Syndrome... How Does It Affect His Siblings?When I was pregnant with Will, my second baby and Dravet child, I had their whole lives pictured in my head. I was an only child and was so excited...Bookmark for later
