The Realities and Acceptance of the Caregiving RoleSome of us are natural-born caregivers and some of us need more time and energy to learn the skill of caregiving. It is a balancing act of caring for yourself...
Our Child Has a Dravet Syndrome... How Does It Affect His Siblings?When I was pregnant with Will, my second baby and Dravet child, I had their whole lives pictured in my head. I was an only child and was so excited...
From Healthy to Dravet2017 was one of the best years of my life. My husband came back from a deployment just in time for our son's 2nd birthday. We moved from South Carolina...
Mourning the Child You Thought You HadWhen Matthew was born, he was full term, had a high Apgar score and was just as perfect as a baby could be. He hit all his milestones as any...
Tips for an Overwhelmed CaregiverMy son, Matthew, was diagnosed with epilepsy at the age of 6. It took a few months, but we finally achieved seizure freedom with felbamate and the modified Atkins diet...
We Had Never Heard of Dravet Syndrome – Until His DiagnosisThe first time I Googled "Dravet syndrome" was the day we got our diagnosis for our son Will – the first time I had ever heard "Druh-vay." The very first...
Seizure Triggers in Dravet SyndromeDravet syndrome is a form of childhood epilepsy that begins in infancy. Older names for Dravet syndrome include polymorphic seizures, polymorphic epilepsy in infancy, or severe myoclonic epilepsy in infancy...
What Is Lennox-Gastaut Syndrome?Lennox-Gastaut syndrome (LGS) is a rare and severe form of epilepsy that begins in childhood. LGS often causes learning problems and developmental delays. There is no cure for LGS, but...
Does Deep Brain Stimulation Treat Lennox-Gastaut Syndrome?Lennox-Gastaut syndrome (LGS) is a severe type of epilepsy. Seizures usually start before 4 years old. People with LGS have many types of seizures, including tonic seizures, in which muscles...
What Is Dravet Syndrome?Dravet syndrome is a rare but severe form of epilepsy that begins in infancy. The condition also used to be called severe myoclonic epilepsy of infancy or polymorphic epilepsy in...
