Do You Ever Wish?

Being a parent and or caregiver to someone with a chronic illness, invisible illness or disability, including epilepsy, is already super busy. Whether the loved one is a baby, child, preteen, teen or adult, the minute-to-minute, daily challenges can feel overwhelming at times. I know as I too have felt that way.

Wishes for your chronically ill/disabled loved one

When things get quiet at times (Yes, it can happen—naps etc.), do you ever wish:

• the world would just, stop?
• there was, a cure? There currently is no cure for epilepsy.
• more people would take conversations around epilepsy, chronic illness, invisible illness and disability, more seriously?
• for a break? Not everyone is fortunate enough to have family or friends to just step in and offer to help, to ease the load. I know this from personal experience.
• someone would just listen, without advice or judgements? I know everyone wants you to hear their advice, but sometimes we just need an ear. Nothing more.

My wishes for my daughter who has epilepsy

My questions about "Do you ever wish” could go on ...
But for me, a mom of a loved one with epilepsy, my wish is that her seizures would just stop! And that she would not have to take anti-seizure medication anymore (She currently takes them twice a day.). Yes, I know. I DREAM BIG. I am also aware that if her seizures did stop, her seizures could return at any time and anywhere. That's our reality and the reality for many parents or caregivers, whatever their loved ones have been learning to deal with. Each is different. Loved ones who need a little extra help, support or encouragement handling the issues life has dealt them need to know they are not burdens.

For now, I celebrate victories and hope for a cure

I will continue to:

• wish.
• never give up hope.
• cheer for her, fight along side her through her struggles.
• celebrate her victories, no matter how big or how small.

You are not alone

Here is my wish for you - the parent, caregiver or whoever is reading this: I wish for victories for you on your unique journeys.

YOU ARE NOT ALONE!!

Signed Lorrie Forseth