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TheHoo

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"I'm furious with CVS, because they ran out of one of my three ASMs and said the stock would be back in supply on Monday night. I can't drive, for obvious reasons, and called both at 8. 45 p.m. on Monday, just before the pharmacy closed, and on Tuesday, hoping my Rx would be filled. I called again today at 8 a.m., Wednesday, told they my order was "being processed," and would be ready in one hour. After three hours, I took the 30 minute walk to pick it up, only to find it still was not available, surrounded by a group of very unhappy other CVS customers. Two days without taking this med, I've felt very dizzy, nauseated, and unable to focus all day, with one seizure around 11 a.m. CVS offered my a two day emergency supply, but my insurance wouldn't cover it, and it was too expensive for me to pay. I hope a good night's sleep and restoration of all three meds results in a seizure-free day tomorrow, with more energy and feeling more human."

  1. , I am so sorry to hear this 😔. Please know that we are here for you through this journey with epilepsy. We are wishing you all the best! Get well soon💜. -Kailah, Epilepsy Team Member

  2. Thanks for your message. I had another sz at 6 a.m this morning and have been sort of out of it all day. Luckily, I have all three of my AEMs and hope to recover after a few days. Really noticed a lack of energy; seizures take a lot out of me, even when I think I haven't done anything!

  3. , I am so sorry to hear that you had to go through this with CVS. How was you doing now? Hoping things smoothed out for you. Wishing you all the best.
    -Kailah, Epilepsy Team Member