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Epilepsy In America: What's That?

The 2022 Epilepsy In America survey is now closed.

When people hear "epilepsy," they might think of what they have seen on TV or in a movie. A convulsive seizure, someone falling to the ground and shaking. But anyone who lives with epilepsy – day in and day out – can tell you it is so much more than that.

Are you one of the millions of people living with epilepsy? We want to hear from you.

What's the survey about?

The survey covers "basics" like diagnosis and treatment experiences, but it also dives into the nitty-gritty, like the emotional impact and the day-to-day challenges of managing epilepsy. We hope to learn more about all things epilepsy, including complementary and alternative treatments, diet and nutrition, symptoms, and quality of life.

Why should I take the survey?

Each person who takes the survey contributes to a better understanding of epilepsy awareness and knowledge, and can help others who are dealing with epilepsy to feel less alone. Sharing your experiences through the survey can reveal the similarities and differences between each person’s journey with epilepsy and can bring greater awareness to this condition that affects 1 in 100 people in the United States.

What will the survey ask me?

The survey will ask about diagnosis, symptoms, symptom management, quality of life, relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information.

Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your internet browser and return when you are able. You will resume where you left off.

How do we use the In America survey data?

Survey responses help us and our partners better understand the epilepsy community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become the property of Health Union, LLC.

What happens after I take the survey?

After the survey closes each year, the Editorial Team at EpilepsyDisease.com takes your responses and creates an infographic to share the community's responses and highlight important findings from the survey.

But that’s not all – throughout the year, we publish articles and videos based on learnings from the survey. We hope that this survey-driven content contributes to the information available to those affected by epilepsy and helps them connect with those who have walked the same path.

One voice may seem like it won’t make a difference, but each voice can change how others perceive life with epilepsy and bring comfort to someone coping with a diagnosis.

Still have questions? Comment below, or email us at contact@epilepsydisease.com for more information.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The EpilepsyDisease.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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