Epilepsy In America: What's That?
Last updated: April 2023
Note: The 2023 In America survey is no longer open.
When people hear "epilepsy," they might think of what they have seen on TV or in a movie. A convulsive seizure, someone falling to the ground and shaking. But anyone who lives with epilepsy – day in and day out – can tell you it is so much more than that.
Are you one of the millions of people living with epilepsy? We want to hear from you.
What is the survey about?
The survey covers "basics" like your diagnosis and treatment experiences, but also dives into the nuances of epilepsy, like the emotional impact and day-to-day challenges. In addition, you’ll have the opportunity to not only tell us about epilepsy but also any other conditions you are living with and how each impacts your life.
Why should you take the survey?
Each person who takes the In America survey contributes to a better understanding of epilepsy as well as other health conditions. With better knowledge, we can help others who are navigating health challenges feel less alone. We hope to capture a full picture of all aspects of your health experiences and bring greater awareness to conditions that may be misunderstood. Sharing your experiences through the survey can reveal how similar each person’s journey is, as well as the differences that make each journey unique.
What will the survey ask me?
The survey will ask about different moments of your journey with epilepsy, including:
- Symptoms and symptom management
- Quality of life
- Treatment awareness and experience
- Other diagnosed conditions
We do not require your name, address, or other personal information for you to participate. You also do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You may continue where you left off.
How do we use the In America survey data?
Survey responses help us and our partners better understand the epilepsy community. All survey responses remain confidential, reported only in total. This means your specific responses will not be reported individually. All information will become property of Health Union, LLC.
What happens after I take the survey?
After the survey closes each year, EpilepsyDisease.com will share the responses back to the community and highlight important findings from the survey. You can read the latest In America survey findings in "The Barriers of Epilepsy."
But that is not all. Throughout the year, we publish articles and videos based on what we learned from the survey. We hope this survey-driven content contributes to the information available to those affected by epilepsy and helps you all connect with others who walk the same path.
Sharing your story can make a difference, and we believe each story can change how others understand life with epilepsy.
Still have questions? Comment below, or email us at email@example.com for more information.
Do you have epilepsy? Or are you caring for someone with epilepsy?
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