Forums

Read conversations, start a discussion, and connect with others about epilepsy.

What is a routine that you have that brings you a special sense of joy?

Routine sometimes has a negative connotation. But the right routine can generate joy too. What rituals do you have that add light...

What is something small that makes you happy?

The simple pleasures in life can give it meaning. What is something tiny that brings you happiness? Why?...

What is the definition of a productive day?

Managing epilepsy and its symptoms certainly can sometimes limit what we can do in one day. But it doesn't mean productivity is...

Advocacy Work

Hey everyone how are you? SOS, I have my patient leader certificate but I am not getting opportunities based on organizations wanting...

Nocturnal seizures

Hi has anyone else had these and none whilst awake ?...

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

coping with losing a seizure streak

Hi i’m Kim I lost 2 years without a seizure last night, i had a nocturnal seizure which I haven’t had in...

Does anyone experience brain zaps?

I stopped taking my epilepsy tablets for a few years. Besides the occasional “aura”, I didn’t experience any seizures or symptoms -...

Memory

How has epilepsy impacted your memory?...

Support Systems

Do you feel like you have a strong support system when it comes to managing your health? What does your support system...

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