Hello! My Name is AmyAt seventeen years old, I got first grand mal seizure, but I worked through the seizures not knowing what was going on until one of the coworkers saw my seizures...Reactions 0 reactions Comments2 repliesAwarenessDiagnosisSeizures
Memory in epilepsyHello, I am currently studying for a degree in Psychology at the University Centre at Blackburn College and I am conducting a piece of independent research investigating the impact of...Reactions 0 reactions Comments0 replies
How do you deal with celebrations and events centered around drinking? As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...Reactions 0 reactions Comments37 repliesCoping
Doctors Requesting Unrelated Information - How do You Handle It?When I see a new neurologist I’ve almost always been asked a couple questions like: do I drive, do I operate heavy machinery, etc. I have never been told why...Reactions 0 reactions Comments3 replies
Recent tonic clonic, worst one yet.Hi I'm new here and would like to share a bit. I'm a 51 year old male had my first seizure not long before my 50th birthday, was diagnosed with...Reactions 0 reactions Comments1 repliesCopingCognitive Issues
What's your seizure journey? In for questionsHi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...Reactions 0 reactions Comments0 repliesDiagnosisSeizuresTypes of Epilepsy
Switching Medication From Epilim to Keppra?Has anyone else with JME suffered unexplained, intense anxiety and increased myoclonus when switching from Epilim (Sodium Valproate) to Keppra (Levetiracetam)? Seizures well controlled for 15 years+ on Epilim. Switched...Reactions 0 reactions Comments1 repliesTreatmentSide EffectsCognitive Issues
Was this a seizure? Hi, 25, F. It was during the night and I was in the bed with my toddler. It felt like I suddenly woke up, but my eyes were still closed...Reactions 0 reactions Comments1 repliesSeizuresSleep Types of Epilepsy
I have epilepsy but I can drive I am a Driver no problem me Driving time...Reactions 0 reactions Comments1 repliesAwarenessHealthcare TeamWork & Employment
I feel like giving upAfter 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...Reactions 0 reactions Comments9 repliesCopingSeizuresTips & Advice