FeaturedActive todayDon't give upI was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...Reactions 0 reactions Comments11 repliesCopingDiagnosisSeizures
FeaturedSeizure care as someone with epilepsyAs someone with epilepsy, how do you want to be cared for when you have a seizure?...Reactions 0 reactions Comments10 repliesTips & AdviceMental HealthCoping
Active todayHello! My Name is AmyAt seventeen years old, I got first grand mal seizure, but I worked through the seizures not knowing what was going on until one of the coworkers saw my seizures...Reactions 0 reactions Comments2 repliesAwarenessDiagnosisSeizures
Active todayDoes Weather Impact Your Seizures?Has anyone experienced break out seizures due to unstable weather lately?!?? Like out of no where… just boom; seizure. But the weather has been so upside down and outta control...Reactions 0 reactions Comments27 repliesSeizuresTypes of EpilepsyAwareness
Active todayHow has epilepsy impacted your mental health? May is Mental Health Awareness Month. And we know that one of epilepsy’s most common complications is issues with mental health. 💜 Tell us: 🧠 How has epilepsy impacted your...Reactions 0 reactions Comments0 replies
Active 4 days agoStress and anxiety triggering seizures Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...Reactions 0 reactions Comments27 repliesTips & AdviceCoping
Active 4 days agoCaring for Someone With Epilepsy: Seizure CareAs a caregiver, how do you care for a loved one when they have a seizure?...Reactions 0 reactions Comments5 repliesCopingSeizuresTips & Advice
Active 7 days agoHow do you deal with celebrations and events centered around drinking? As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...Reactions 0 reactions Comments37 repliesCoping
Active 7 days agoTypes of Epilepsy What type of epilepsy were you diagnosed with?...Reactions 0 reactions Comments28 repliesTypes of EpilepsyDiagnosis
How did you learn that menstrual cycles can impact epilepsy?As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...Reactions 0 reactions Comments11 repliesIntimacy & RelationshipsMental HealthCoping
Doctors Requesting Unrelated Information - How do You Handle It?When I see a new neurologist I’ve almost always been asked a couple questions like: do I drive, do I operate heavy machinery, etc. I have never been told why...Reactions 0 reactions Comments3 replies